October is recognized as Spina Bifida Awareness Month–a time to shed light on the causes, treatments and support of the paralyzing birth condition.
Spina Bifida, the most common permanently disabling birth defect in the U.S., occurs during a child’s formation in their mother’s womb. Spina Bifida, which means “split spine,” happens when the baby’s spinal column doesn’t close all the way. In the U.S. alone, eight babies are born daily with Spina Bifida or similar spinal cord and brain defects. While the cause of thecondition remains unknown, genetics and environment are believed to play a role
The Purpose of Spina Bifida Awareness Month
The goal of Spina Bifida Awareness Month is to increase the awareness of its community and in particularly their needs, opportunities for support, legislative advocacy efforts and advancements in research. While this condition may not affect all children the same, the majority of individuals with Spina Bifida require numerous surgeries, which can be very expensive. Through fundraising events, the Spina Bifida Association (SBA) works to make a distinct difference in the lives of those with the condition.
While funds are raised year-round, October is a special month for the community to raise funds to allocate at the local level in the following ways:
- Spina Bifida community support groups
- Scholarships
- Spina Bifida community networking events
- Special assistance for Spina Bifida individuals or families
- Advocating for state legislative and healthcare improvements
- Mentorship programs
- Local awareness and prevention programs
- Newborn baskets
- Adaptive library supplies
How You Can Contribute to Spina Bifida Awareness and Research
You can contribute by donating your time or money to help the cause and/or through spreading the word to educate others on Spina Bifida. Below are some ways you can join in the fight against this condition not only during October but throughout the year.
100 Ways to Make a Difference
Join the SBA and their thousands of supporters across the country to help raise money for research and treatment while bringing awareness to the condition. There are 100 different ways you can help make a difference. Volunteer with the SBA to host a community fundraiser event of your choice. Individuals, groups, schools or corporations can host bake sales, bowl-a-thons, parties and office dress-down days to support the cause. Click here for more information.
Spina Bifida Education Days
The SBA holds Education Days every year at various locations nationwide. These day-long learning conferences are designed to discuss best practices for healthcare professionals and individuals for caring for and working with the development of individuals with Spina Bifida. For more information on Spina Bifida Education Days, visit their website.
Walk-N-Roll Fundraising Events
Walk-N-Roll for Spina Bifida, the SBA’s largest fundraising event, is a non-competitive one-mile family-friendly walk to raise awareness of the condition. In addition to the fundraising missions, these nationwide walks celebrate the accomplishments of the nearly 177,000 Americans living with the condition. The proceeds from these special events are used to support local programs and services for those affected by Spina Bifida. Register for one of their upcoming fundraising events.
Spina Bifida Support Groups
The SBA and various independent groups have Spina Bifida support groups and networks with nationwide chapters. These groups provide a community, education and information for individuals or families touched by this condition. Get involved by donating your time or money in aid of your local Spina Bifida support groups
Join the SBA and its community this month in spreading the word and awareness for the condition.
